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About The PSP
Association |
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 The
PSP Association was established in 1994 by Brigadier Michael Koe
and his wife Sara, after she was diagnosed as having PSP. The
family were distressed by the lack of knowledge concerning this
comparatively rare neurological disorder and appalled to learn
that there was so little research seeking treatment or cure, at
the time. The PSP Association was registered as a charity in
April 1994. Sara Koe sadly died in January 1995 from
aspirational pneumonia, a not uncommon complication of PSP.
The Association has
steadily grown and currently has over 2,000 subscribers and
numerous supporters across the UK. We provide support, advice
and information to people with PSP, their carers, families and
friends, and to health and social services professionals
involved in the management and care of those with PSP. |
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What is PSP? |
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Progressive Supranuclear Palsy (PSP) is a brain disease.
It entails the progressive death of neurons or nerve
endings in the brainstem and basal ganglia above the
nuclei in the brain (hence ‘supra’nuclear). This is the
area that controls balance, movement, vision
(particularly upgaze and downgaze) speech and the
ability to swallow, hence the main symptoms, some of
which may not appear or progress at all or until later
in the disease.
However,
other symptoms, including behavioural changes, may also
appear. The rate of progression of symptoms varies
considerably from person to person. |
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The three main
objectives of The PSP Association are to : |
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promote and sponsor research worldwide into the cause,
effective treatment and eventual cure of PSP
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provide information and support for families afflicted
by this disease across Europe |
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▪
engender awareness, particularly amongst relevant
medical professionals, of PSP and of the Association,
mainly within the UK |
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Please click here to find out more about
The PSP Association, PSP itself and how you can help us |
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